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Reinforced Nordic collaboration on data resources

Challenges from six perspectives

image of Reinforced Nordic collaboration on data resources

This study is mapping the most significant challenges and obstacles for a reinforced Nordic cooperation on data resources. Focus is put on existing national databases and registers established mainly for administrative purposes but also the question of newly-generated scientific data is handled. The challenges are analyzed from political, legal, ethical, organisational, technical and financial perspectives. The broad scope targets primarily policy makers involved in eScience development on national and/or Nordic level. Involved parties in the study are Nordic Council of Ministers, NordForsk, Finnish Ministry of Education and Culture and CSC – IT Center for Science. Special focus has been put on the challenges for register-based research, since all the Nordic countries have a vast amount of population-based registers which are considered not to be used to their full potential in various research fields. One of the challenges is to find way to combine these registers with other research data and the Nordic countries have to find their own way of unique collaboration methods, since there are no equivalent pre-conditions for this kind of research in the rest of Europe. The study also gives a national overview of the current progress in the five Nordic countries, to raise awareness of important national initiatives which can contribute to a stronger collaboration on the Nordic level.

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Nordic collaboration

Collaboration regarding data resources origins from the basic idea that the value of information increases when it is shared. There is a massive amount of information stored in databases and registers owned by public authorities in the Nordic countries. These databases have been built up mainly for monitoring and administrative purposes but can be used for research purposes to a much greater extent than today. Population-based registers are very important examples since they are so unique for the Nordic countries. But there are many other variants of databases owned by public authorities, which do not contain so sensitive information as population-based registers, for instance data on climate and environment.

English

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